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  • Home
    • Sickle Cell Disease (SCD)
    • Related SCD Resources
  • Events
    • 5K Walk/Run
  • Sickle Cell News
    • Patient Spotlights
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    • Patient Portal
    • Community Outreach
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Latest News

Latest Sickle Cell News

National News



Join Generation S  Novartis teams up with celbrity Jordin Sparks and SCDAA (Sickle Cell Disease Association of America) to raise awareness of Sickle Cell Disease.  To register, please go to JoinGenS.com.
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Sickle Cell's Impact on Hearing & Balance  Dr. Dawn Nelson educates attendees at the Charles F Whitten Memorial Lecture about the impact that Sickle Cell Anemia has on patients' hearing and balance.  Although this aspect of the disease is often overshadowed by topics such as chronic pain, nearly 37% of sickle cell patients experience some level of hearing loss and loss of balance during their lifetime. 
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How I Recover From a Sickle Cell Crisis  Sickle Cell patient Tito Oye shares her best practices to rebound from a vaso-occlusive crisis. These self-care tips can help patients shorten and rebound from a pain crisis.  
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Caregivers & Sickle Cell: Caring for a loved one with sickle cell disease? You are not alone! Caregivers and patients share their personal journies dealing with a loved one who has Sickle Cell Disease.  Read their inspirational stories and check out their list of Sickle Cell resources.
> Read More

FDA Approves 1st Targeted Therapy To Reduce Pain Crisis  U.S. Food and Drug Administration approved Adakveo (crizanlizumab-tmca), a treatment to reduce the frequency of vaso-occlusive crisis – a common and painful complication of sickle cell disease that occurs when blood circulation is obstructed by sickled red blood cells
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FDA Approves Oxbryta, the First Medicine Specifically Targeting The Root Cause of Sickle Cell Disease U.S. Food and Drug Administration approved Oxbryta, an oral therapy taken once daily, is the first approved treatment that directly inhibits sickle hemoglobin polymerization, the root cause of SCD.
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Cincinnati News


Teens with Sickle Cell meet Life-saving Donors at Hoxworth Event  Taryn Walker, 15 and King Walker, 13, got to meet donors who are helping to save the siblings lives.  Both Taryn and King have Sickle Cell disease and rely upon blood transfusions to keep them alive.  The pair had the honor of meeting local donors at a reception hosted by Hoxworth Blood Center on July 31, 2019. 
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Cincinnati Children's Sickle Cell Research and Education Day  Sickle Cell Alliance Foundation will be participating in the 2019 Cincinnati Children’s Sickle Cell Research and Education Day on Saturday, August 24, 2019.  This annual event helps keep patients and caregivers up-to-date on the latest research and support resources available.   It is an honor to be able to continue to support patients and their families at this community benefit.  

Hydroxurea Used to Eliminate Syptoms at Cincinnati Children's  Cincinnati Children's Hospital is leading the charge in fasttracking dosing procedures for Hydroxurea, a medicine that is helping many patients eliminate the symptoms of sickle cell disease.  A recent study shows that perfecting the dosage in as little as one day can have a huge impact on how well patients adjust to treatment.  
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Walk In Awareness 2019    Sickle Cell Alliance Foundation participated in the 2019 Walk in Awareness on Saturday, June 1, 2019.  Our Founder and CEO, Lisa Meathchem and Sickle Cell Warrior Taryn cheered on the nearly 100 walkers while educating the community about sickle cell disease.  Participants received lots of free health screenings.  The highlight of the day was meeting Ms. Betty Ware, a 99 year old breast cancer survivor.
Cincinnati Childrens Partners with Roviant     Cincinnati Children's Hospital joins forces with Swiss Company Roviant.  Together they form, Aruviant Sciences, a biopharmaceutical company focusing on innovative gene therapies for hematological conditions such as sickle cell disease. 
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