Please check out these awesome Sickle Cell related resources.  Please note, the links provided on this page will take you to a 3rd Party website, while we think these links are awesome we cannot endorse or guarantee the accuracy of the information contained on these external sites.  Please contact your medical provider with any health related questions or before making any changes to your treatment plan.  
Centers for Disease Control & Prevention
sickle cell Disease (scd) 
Informational resources for patients & families with Sickle Cell Disease.
Cincinnati Children's Hospital & Medical Center
sickle cell center
Provides comprehensive medical care for patiens with Sickle Cell Disease and caregiver resources.
Together For Rare
Pfizer Rare DIsease
Patient Affairs Liaisons (PALs) support Sickle Cell patients & caregivers by connecting them w/ resources, programs, & information.
Ohio Department of Health
Sickle Cell services
State resources for providers who treat individuals with Sickle Cell Disease. Great tool to find local programs for patients.
One SCD Voice
A Sickle Cell Community
A community-based educational platform   that empowers people impacted by Sickle Cell including patients and families.
 National Center Chronic Disease Prevention & Health Promotion
Caregive resource center
An abundance of resources for caregivers of individuals with a chronic disease.
Sickle Cell Disease Coalition
United to conquer sickle cell
Community of resources aiming to amplify the voice of SCD stakeholders.
Pinpoint
Personalized pain management tool
A web app to help teens track, assess and communicate about their Sickle Cell pain.
Living Well with Sickle Cell
the bear necessities
Downloadable color book to teach kids about sickle cell disease.  
The Blood Health Network
A NeTWORK of Organizations
with a demonstrated interest in blood diseases & disorders.
I'm No Different Than You
by J. Mahaffey and K. High
A book about a young warrior and her challenges at a new school.
Sickle Cell Information
​Center
Resource center
Info for members of the Sickle Cell community including patients, families, health care providers & more!