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    • Related SCD Resources
  • Events
    • 5K Walk/Run
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Sickle Cell



​Related News

INSPIRING HOPE FOR PATIENTS AND FAMILIES LIVING
WITH SICKLE CELL

What You Should Know Before You Give Blood

2/9/2021

 
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Sickle Cell Warriors rely on blood donations to stay alive.  Considering giving blood?  Please check out this article on things you should know before you donate, including the health benefits of donating!
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Hope For Sickle Cell Challenge

12/1/2020

 
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The National Heart, Lung and Blood Institute is seeking innovative ways to promote awareness of Sickle Cell Disease. They've created a challenge especially for college & grad students.  

If you're currently enrolled in college, graduate school, or working as a teacher/graduate assistant and want help improve the lives of Sickle Cell Warriors, please consider joining the NHLBI Hope for Sickle Cell Challenge for a chance to win up to $25,000!
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How To Be A Good Friend To Someone With Sickle Cell

10/8/2020

 
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Read this Sickle Cell Warrior's advice for those who have a friend with Sickle Cell Disease.  Includes her personal experience and tips anyone can use to be a better SCD Friend.
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Aruvant Sciences - Title Sponsor for SCAF 5K Walk/Run

5/12/2020

 
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We are pleased to announce SCAF’s special partnership with Aruvant Sciences, a biopharmaceutical company whose mission is to bring hope to Sickle Cell Disease patients by developing life-changing and potentially curative therapies. As part of our partnership, Aruvant has agreed to be SCAF’s title sponsor this year for several key events and programs.

For more info please visit www.momentumtrials.com to learn about Aruvant’s SCD trial that is currently enrolling.
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Talking With Forest Park: The Sickle Cell Alliance Foundation

4/24/2020

 
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​Executive Director, Sonya L. Moore chats with Forest Park City Manager about Sickle Cell Disease and how the community can get involved in raising awareness.  
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SCDAA Launches Peer-to-Peer Mentoring Program

1/10/2020

 
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SCDAA launches Peer-to-Peer Mentoring program to help young adults with sickle cell w who are transitioning from pediatric to adult care.  Learn more about eligibility requirements to get involved in this program.
Source: SCDAA
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In Opioid Crisis, Those with Sickle Cell Face Challenges Getting Them In Emergency

1/2/2020

 
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Lisa Meathchem and daughter, Samone Meatchem chat with Liz Bonis, Health Reporter and Dr. Charles Quinn of Cincinnati Childrens about the impact that the opioid crisis is having on the treatment sickle cell patients receive during a pain crisis.
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FDA Approves Oxbryta, the First Medicine Specifically Targeting The Root Cause of Sickle Cell Disease

12/4/2019

 
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U.S. Food and Drug Administration approved Oxbryta, an oral therapy taken once daily, is the first approved treatment that directly inhibits sickle hemoglobin polymerization, the root cause of SCD.
Source: Healthline

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FDA Approves 1st Targeted Therapy To Reduce Pain Crisis

11/15/2019

 
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U.S. Food and Drug Administration approved Adakveo (crizanlizumab-tmca), a treatment to reduce the frequency of vaso-occlusive crisis – a common and painful complication of sickle cell disease that occurs when blood circulation is obstructed by sickled red blood cells
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Sickle Cell Alliance Walk Sheds Light on Invisible, Misunderstood Disease

8/22/2019

 
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Sonya Moore, Executive Director of Sickle Cell Alliance Foundation chats with Liz Bonis, Health Reporter at Local12 about our4th Annual Walk & Run for Sickle Cell.
Source: Local12.com
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