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    • Sickle Cell Disease (SCD)
    • Related SCD Resources
  • Events
    • 5K Walk/Run
  • Sickle Cell News
    • Patient Spotlights
  • Programs
    • Patient Portal
    • Community Outreach
  • About Us
    • Executive Team
  • Donate
    • Our Partners
  • Contact Us

Sickle Cell



​Related News

INSPIRING HOPE FOR PATIENTS AND FAMILIES LIVING
WITH SICKLE CELL

In Opioid Crisis, Those with Sickle Cell Face Challenges Getting Them In Emergency

1/2/2020

 
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Lisa Meathchem and daughter, Samone Meatchem chat with Liz Bonis, Health Reporter and Dr. Charles Quinn of Cincinnati Childrens about the impact that the opioid crisis is having on the treatment sickle cell patients receive during a pain crisis.
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FDA Approves Oxbryta, the First Medicine Specifically Targeting The Root Cause of Sickle Cell Disease

12/4/2019

 
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U.S. Food and Drug Administration approved Oxbryta, an oral therapy taken once daily, is the first approved treatment that directly inhibits sickle hemoglobin polymerization, the root cause of SCD.
Source: Healthline

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FDA Approves 1st Targeted Therapy To Reduce Pain Crisis

11/15/2019

 
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U.S. Food and Drug Administration approved Adakveo (crizanlizumab-tmca), a treatment to reduce the frequency of vaso-occlusive crisis – a common and painful complication of sickle cell disease that occurs when blood circulation is obstructed by sickled red blood cells
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Sickle Cell Alliance Walk Sheds Light on Invisible, Misunderstood Disease

8/22/2019

 
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Sonya Moore, Executive Director of Sickle Cell Alliance Foundation chats with Liz Bonis, Health Reporter at Local12 about our4th Annual Walk & Run for Sickle Cell.
Source: Local12.com
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Teens with Sickle Cell meet Life-saving Donors at Hoxworth Event

7/31/2019

 
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​Taryn Walker, 15 and King Walker, 13, got to meet donors who are helping to save the siblings lives.  Both Taryn and King have Sickle Cell disease and rely upon blood transfusions to keep them alive.  The pair had the honor of meeting local donors at a reception hosted by Hoxworth Blood Center on July 31, 2019. 
Source: WLWT

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Cincinnati Children's Helping To Eliminate Sickle Cell Symptoms

6/25/2019

 
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Researchers at local hospital work to find the perfect dosing of Hydroxyurea for youngsters with sickle cell.  Patrick McGann and Anu Marahatta use pharmacology software and several drops of patients' blood to personalize the dosage of a sickle cell drug. 
​
Source: WVXU
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