Blog Posts

Talking With Forest Park: The Sickle Cell Alliance Foundation

4/24/2020

Executive Director, Sonya L. Moore chats with Forest Park City Manager about Sickle Cell Disease and how the community can get involved in raising awareness.

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SCDAA Launches Peer-to-Peer Mentoring Program

1/10/2020

SCDAA launches Peer-to-Peer Mentoring program to help young adults with sickle cell w who are transitioning from pediatric to adult care. Learn more about eligibility requirements to get involved in this program.
Source: SCDAA

In Opioid Crisis, Those with Sickle Cell Face Challenges Getting Them In Emergency

1/2/2020

Lisa Meathchem and daughter, Samone Meatchem chat with Liz Bonis, Health Reporter and Dr. Charles Quinn of Cincinnati Childrens about the impact that the opioid crisis is having on the treatment sickle cell patients receive during a pain crisis.

FDA Approves Oxbryta, the First Medicine Specifically Targeting The Root Cause of Sickle Cell Disease

12/4/2019

U.S. Food and Drug Administration approved Oxbryta, an oral therapy taken once daily, is the first approved treatment that directly inhibits sickle hemoglobin polymerization, the root cause of SCD.
Source: Healthline

FDA Approves 1st Targeted Therapy To Reduce Pain Crisis

11/15/2019

U.S. Food and Drug Administration approved Adakveo (crizanlizumab-tmca), a treatment to reduce the frequency of vaso-occlusive crisis – a common and painful complication of sickle cell disease that occurs when blood circulation is obstructed by sickled red blood cells

Sickle Cell Alliance Walk Sheds Light on Invisible, Misunderstood Disease

8/22/2019

Sonya Moore, Executive Director of Sickle Cell Alliance Foundation chats with Liz Bonis, Health Reporter at Local12 about our4th Annual Walk & Run for Sickle Cell.
Source: Local12.com

Teens with Sickle Cell meet Life-saving Donors at Hoxworth Event

7/31/2019

Taryn Walker, 15 and King Walker, 13, got to meet donors who are helping to save the siblings lives. Both Taryn and King have Sickle Cell disease and rely upon blood transfusions to keep them alive. The pair had the honor of meeting local donors at a reception hosted by Hoxworth Blood Center on July 31, 2019.
Source: WLWT

Cincinnati Children's Helping To Eliminate Sickle Cell Symptoms

6/25/2019

Researchers at local hospital work to find the perfect dosing of Hydroxyurea for youngsters with sickle cell. Patrick McGann and Anu Marahatta use pharmacology software and several drops of patients' blood to personalize the dosage of a sickle cell drug.
Source: WVXU

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Related News

Talking With Forest Park: The Sickle Cell Alliance Foundation

SCDAA Launches Peer-to-Peer Mentoring Program

In Opioid Crisis, Those with Sickle Cell Face Challenges Getting Them In Emergency

FDA Approves Oxbryta, the First Medicine Specifically Targeting The Root Cause of Sickle Cell Disease

FDA Approves 1st Targeted Therapy To Reduce Pain Crisis

Sickle Cell Alliance Walk Sheds Light on Invisible, Misunderstood Disease

Teens with Sickle Cell meet Life-saving Donors at Hoxworth Event

Cincinnati Children's Helping To Eliminate Sickle Cell Symptoms

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